Waving goodbye to 2011, Welcome 2012 with joy! : )

December 31st, 2011 . No Comments »

*Blink blink* and today is the last day of 2011!

How time flies.. 2011 Is really a memorable years for me. It filled with various emotions that I just can’t comprehend. From despair to hope, from betrayal to trust, from old to new, from sadness to joy and etc.
I have learnt alot of valuable lesson from various mistakes that I’ve done.
Going to bed with tears many times. I also have many joyful moments like my brother’s birthday celebration, friend’s birthday celebration and of course the best moment was my birthday celebration! Friend’s come and go and realised whom that i didn’t expect will be so caring and concerns towards me when I’m in my darkest moment will be there for me. Helped me whenever I didn’t expect they will.
I’ve experienced alot of things that I’m sure I won’t be forget it in short times.
Sweet moments that whenever I thought back will carved a smile on me without me realising it.

Although my driving skills might not be as good as you, but if you ask me if I dare to try and drive out alone ?? I’ll answer YES I will try!

Someone reminded me that I’m 22 this year. Should really thought of what kind of future I wanna lead ? Should start to think like an adult and starts planning my future. This words always ringin in my mind. I’m always interested in graphic and web design. I hope 2012 I can aleast learn more about it.

Hope 2012 I can have more valuable lesson to learn. More joy than sadness. More opportunity for me to grab.
I wish all my family,friends and love ones have a prosperous and Happy New Year 2012!
New Year wishes

Posted in My thought

Krabi Trip 04.09.2011 – 08.09.2011

September 14th, 2011 . No Comments »

I’m back and here’s the photo I promised to shares!
I’ll update more stories when I’m In a blogging mode kay! :D

Posted in Be happy alwayss...

I’m Back!

August 31st, 2011 . 1 Comment »

Hahaha hello to those who still occasionally visit my lil corner here! Yeah yeah I know my last update was July! But I’m pretty lazy to update! ><

Selamat Hari Raya & Selamat Hari Merdeka!

Hari Raya eve we whole office wear malay attire. Guy wear Baju Melayu & Lady wear Baju Kebaya! Here goes the picture we took that day plus re design by Kim my colleague who’s an ex graphic designer!

Raya Holidays.

Four more days to go and I’m flying to Krabi Island, Thailand for my Raya holidays with my 2nd bro and also my friend cum colleague Alex & Kimmy… First time traveling with them I hope it’ll be a fun and memorable holidays! I promise will update some pic okay! This holiday we’ve planned since last year! Many ups and downs happened that I thought this trip won’t make It. I’m glad we can passed every obstacle.

Random thoughts.

Hmmm lots of emotional ups and down to me. I know who’s my true friend that I can really count and trust.  Known whom is pretend to be a gentleman when he’s not.  Starts to learn that just words isn’t enough I need action.  I know that actions speaks louder than words! All the sweet words just leave it to yourself! I’m no more gullible naive girl anymore.

This year I’m pretty a failure. Don’t have much accomplishment that I can proudly blog with. Many I wanted to do but isn’t as easy as I thought to be.  Oh but I do have very tiny accomplishment! My driving skills are better now. Feel more confidence although still bad in roads but when I drive I have much more confidence now.

I firstly thought of taking part time course to learn graphic design but certain reasons make me used up my savings and thats included my holiday to Krabi Island of course! So guess I need to postponed my graphic design plan.

Hmm thats all for now as I really don’t know what can I share more? No worries guess this time I won’t be away for too long! Will update with some Krabi holidays photo! Take care guys….

 

 

Posted in Family & Friends

June 12th, 2011 . No Comments »

我看到花麗珠这个电视剧我哭了很多次. 不是因为他的爱情故事很感人. 是因为我觉得我像她一样。 不是一个正常人. 不能正常约会男子。也可能不可以生一个正常BB。
在剧中花家姐她比我好。 有个男主角蔣奕. 他不会介意花家姐。他也会给他幸福。But reality check. There;s no such thing as fairytale and I believes many people will be like 蔣奕 grandpa. Have prejudice towards 不正常人.

Posted in Uncategorized

Never Lose Hope.

April 14th, 2011 . 1 Comment »

Last few days I got a called from my doctor from HKL. She told me that there’s a Australian Dermatologist Is coming over to HKL to give a talk to fellow doctor there. After the talk they’ll make some time for this Australian doctor to visit some patients.

She ask If I’m free to drop by to HKL for few hours and let the doctor check out on me. I answered her why not? I would like to know how the studies for Epidermolysis Bullosa more commonly known as EB in other countries too.

Wearing Yvonne’s Heart 4 Hope Tee to HKL and patiently wait the doctor to check on me. In the mean time I come across a 8 years old malay girl who also have EB or whatever illness that also sinced birth due to ear infections and turns to skin disease. She looks tiny and fragile thats make me think of myself when I were much younger. Much weaker and skin condition way more serious than I do now.

The Australian doctor comes to my bed with a group of dermatologist from HKL and introduce herself to me. Doctor Murrell or Prof. Dedee Murrell.

First words she says was “I like your shirts Heart 4 Hope!” Then she discussed my case with other doctor and ask me a few questions.

She suggest my doctor to prescribe some medicine to reduce the bullous and also says will try to help my doctor sort out what kind of EB i really falls into.

Last year Doctor Leong (The doctor who sees me all along) have do a skin biopsy test and took my skin sample and sent to NSC for testing. He told me NSC replied him with 4 possible mutation in my gene. He can’t confirm which category I falls into so hasn’t told me the result. So today he’ll show It to Dr. Murrell  to help me sort it out.

Before Dr. Murrell  left she told me ” Fiona, Never lose hope”

So even though I can’t find a cure at least I hope I can stop it from passing to my futures….

Posted in Health & Body

Better or worse??

January 20th, 2011 . 1 Comment »

When friends or relative ask me how am I doing? How’s my skin condition I’ll replied good.. Things turn better already. Some even says ” Hey Fiona, your skin look better already!” I’ll wonder Is it? I really don’t know.  Indeed if my skin condition compare to when I’m much younger maybe below 12 Is way better. I can walk without support. I can walk more than I used too. I can go for shopping. But if compare with few years back I found my bullous onced it appear pretty hard to dry off. Whenever the bullous almost dry the area will start to itch and If I can’t hold myself and scratch it just a bit it’ll appear a new bullous in the same area. So it’ll go on and off and hard to dry.. Sometimes I feel very tired with my bullous.. I don’t wish to have this bullous again. Why can’t it just go away ? I’m tired of working whole day and reach home before bed times I still have to prick those bullous caused If I didn’t the bullous will enlarge and I can’t walk the next day.  Last time when I much younger I always wish one day I wake up from my sleep my skin will recovered. All the bullous and cranky skin will dissapear.. But that were just a silly dream that never come true. Every year birthday I’ll make the same wish. ” I Wish that one day my skin disease will cure miraculously or someone suddenly appear in front of me saying. Fiona I’ve a cure for you.”  But these few years I didn’t make those wish anymore. I lost hope. I lost faith. After 21 years there’s no a ray of hope I’ve give up.  People frequently says. Don’t give up hope. Don’t give up faith. But do they really understands my pain ? Do they really know what I’ve been through? Words of encouragement I’ve listened alot. But words of criticism I’ve listened way lots more than anyone could imagined.

I know there’s more people that way more pity than me. Some born to be an orphaned some borned to be deaf or blind. But I’m not competing to be the most pity one. I’m just wished someone will understand me. Those words of encouragement leave It for youself as I’ve had enough! I can’t see my future.. Honest!

Just Below My Right Knee.

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Below My Knee 2

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Somewhere around my left wrist.

Sometimes I found It crazy. My dad onced says ” I’m sure in your entire 21 years you won’t feel worries right?. Unlike me I have to worried about the business till can’t sleep at night.”

But who knows my worries? Sometimes I just wondering have anyone will worry bout my future? My uncertain future….

Posted in Confused N Blurrr..., Health & Body

Goodbye 2010.

December 31st, 2010 . 3 Comments »

What a year and it’s going to end soon.

Feeling bit guilty caused can’t realised my 2010 resolution of becoming a competent driver.. Well hope the coming year I could really make It.!

The bestest things about year 2010 was my eldest brother Hendrik finally gets married and I’ve a new family member and that’s my 大嫂 Yee Ling! Congratulation to my brother and sister in law.

Haha feeling bit odd calling her 大嫂 but since I called my bro 哥哥 of course I can’t call his wife by the name lor hor? Haha well make myself use to calling her 大嫂 lor then…

Oh second things must be remembered will be i’ve turned 21st fnally! Lol I’m an adult now! Haha actually it doesn’t make any difference to me.

I don’t celebrate my birthday like any typical 21 years old girl/guy does.  Go clubbing, disco or whatsoever.

In fact I just stay at home and just celebrate with my beloved family the simpler yet warmth way! Here’s the photo of my brother holding a birthday cake  egg to my room and surprise me! Hehe i’m pretty lazy to blog actually but since 2010 waving goodbye soon so final post for 2010 lor.

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To those following my post or known me should’ve know that I’ve been through pretty tough time  early this year with my co worker cum friends whom I trust and helped alots hurts me by betrayed my trust and backstabbing me. I’ve cried alot due to this broken friendship and keep on blaming myself for being so naive and easily trust her.

But I always believes that 天无绝人之路.!

After all the hardship of 1 leg kick the whole office for approx 3 months.

Finally my father’s friend recommend a guy to me to work as a clerk.. Honestly at first my thought was… A guy ?? As a clerk in Powermate ? Hmmm~~ Well do not judge the day by it’s weather and do not judge a book by it’s cover.. Finally I’ve meet and befriend 2 wonderful caring friends cum colleague! I really really hope that I could bond this friendship to be like my bro’s heng dai’s last long for more than ten years or more! I also hope that they both could help me realised my dream to make Powermate the bestest motorcycle shop in klang valley!

 

Posted in Family & Friends

Leonard Chua. A guy whom I should learn from.

December 4th, 2010 . No Comments »

Read newspaper today and the life story of Leonard Chua really touches my heart.

I imagined myself in his shoes. Will I have his determination and courage to lived on ? Hmm honestly I don’t think I have.

An accident takes away everything from him except his life. Merely at the age of 24 he needs to stands up and learn from the basic again. Things as simple as ABC for us also giving him a hards time.
Reading his story onced again reminds me that I should cherished everything I have now. Don’t keep on counting what I’m missing but felt glad and relieved on what I’m having. Never easily give up. I hope whenever I’m down or tried to give up on things I wanna do. I hope Leonard’s story would be my reminder. Totally salute you for being a strong person.. I’m sure whoever read his story will felt touched and inspired. All the best to you Leonard Chua…

Posted in Inspire me, My thought

Epidermolysis Bullosa Simplex (Dowling – Meara Type)

October 24th, 2010 . 1 Comment »

Yeap you’ve read the title. The above so scientific name might be my skin disease name. Epidermolysis Bullosa Simplex (Dowling – Meara Type) aka EB-DM.

I isn’t sure which epidermolysis category or type I falls to as there’s many different type and different symptom.

Few years back there’s also a HKL dermatologist specialist  told me that the name for my case Is Epidermolytic hyperkeratosis, also called bullous congenital ichthyosiform erythroderma, is a rare autosomal dominant ichthyosis.

I really don’t know which Is right. All I wanted was to know actually what’s the name of my skin disease so when people asked I could let them know. I also would like to know how and why It could happen to me? Is it genetic ? Is there a cure ? My body looks tinier than girl my age is it because of this disease? I’m sure in front of many peoples eyes I look fragile, looks like a weakling. For some mean person I might look pretty useless to them.

Next week I’m turning 21 a young adult. I thought. I’ve missed the precious school life,college life and so on. I don’t lead a life like what a normal teenager does. I don’t hope my life pass on so meaningless In future. Time flies and won’t stop to let me waste my time. I wish to have a healthy lifestyle. I want to live my life with as little regret as possible. I really regret can’t go for a formal education. Seeing people talk about their past about school life. How naughty they were when they were a kid. Talk about their college life. Talk about first time being independent while studying abroad. I feel so lost. Seems like can’t connect with them. I have a college friend when we meet up I especially quiet. It’s not that I want to be unfriendly or cold and of course I’m not shy. I just don’t have topic with him. Don’t wanna make a fool outta myself when he starts talking about general knowledge and I don’t know a bits.

Yvonne have gone to National Institute Of Healths In Bethesda, Maryland, US aka NIH. for research on her disease NF2 I wish one day I could be like her participate In NIH research program and hope that they’ll help me found what is my disease all about and who knows there might be a cure ?

Chances are slim. But that doesn’t mean there’s no hope right ? I wish one day I can find a cure for myself and others. Never give up hope.!

Posted in feelings.., Health & Body

The Power Of Dreams.

October 23rd, 2010 . No Comments »

The only place where your dreams becomes impossible

Is in your own thinking.

The mind is the limits.

As long as as the mind can envision the fact that you can do something.

 

YOU CAN DO IT.! As long as you 100% believes.

Posted in Inspire me
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